NATIONAL MS SOCIETY, MID AMERICA CHAPTER
About The National MS Society, Mid America Chapter
Multiple sclerosis (MS), an unpredictable, often disabling disease of the central nervous system, interrupts the flow of information within the brain and between the brain and body. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are moving closer to a world free of MS.
Programs & Services Offered
- Medical research and advocacy
- Educational and social programs
- Partners in MS Care is a National MS Society program that recognizes and supports quality MS care by encouraging strong partnerships between MS clinicians and the Society.
- In 2016, the Mid America Chapter offered seven educational and social programs to people living with MS in Nebraska including the TREND Symposium-a half-day seminar focused on research trends and wellness with MS; National Teleconference Series – a monthly educational program on topics of symptom management for MS; Everyday Matters; Free From Falls; a family social event and other connection opportunities.
- Support Groups and one-on-one peer connections
- The MSFriends and MSconnection.org programs connect individuals living with MS
- MS Navigators program provides one-on-one support to provide a comprehensive approach as well as equipment loans.
- Financial assistance program available
- Referrals to MS Specialty clinics in Nebraska, which provide comprehensive services to improve the quality of health care for people living with MS.
Did You Know?
- In Nebraska, 3,287 people have MS. Including family members and caregivers, the number of people affected by MS is more than 13,000.
- MS is thought to affect more than 2.3 million people worldwide. While the disease is not contagious or directly inherited, epidemiologists — scientists who study patterns of disease — have identified factors in the distribution of MS around the world that may eventually help determine what causes the disease. These factors include gender, genetics, age, geography and ethnic background.
- Epidemiological studies are challenging for several reasons:
- MS can be difficult to diagnose. Since there is no single test for MS, the diagnosis can be missed, delayed or even incorrect.
- MS is not a “reportable” disease, which means that the government does not require physicians to inform any central database when they make the diagnosis. Without this kind of centralized reporting system, there is no easy way to count people with MS.
- Data from earlier epidemiological studies may not accurately represent the current MS population because the investigators used different methods for identifying and counting people with MS, as well as different strategies for analyzing their data.
You Can Help
- $10 provides a person newly diagnosed with multiple sclerosis crucial information and support resources to help them cope with the new diagnosis.
- $25 supports one individual to attend the annual TREND Symposium to hear up-to-date information on research findings that will improve life with MS.
- $50 provides one Thanksgiving Dinner to a family living with MS through our Traveling Turkeys program. The gift of this meal reduces the stress of the holidays for care partners and minimizes the financial burden for the whole family.
- $100 purchases a cooling vest for a person with MS who is dealing with heat-related challenges that warm weather can often bring. This vest allows them to continue enjoying activities outdoors during the difficult summer months.
- $150 replaces a battery for an electric wheelchair or scooter, allowing people to have more independence and freedom.
- $250 covers costs for housing or utilities to help reduce the economic impact of living with an expensive chronic disease.
- $500 provides two weeks of in-home chore services for a person with MS who is having trouble completing tasks such as laundry, vacuuming, dusting, etc.
- $800 installs a set of hand controls for an automobile to make it accessible, this will enhance the independence of the person living with MS.
- $1,500 mails one quarterly issue of the MS Connection to all Nebraskans with MS.
402-505-4000 | web site | 2730 S. 114th Street, Omaha, NE 68144