Matt's Story

Matt is 13 years old. He was diagnosed with severe Crohn’s disease when he was 6 years old. Matt had many issues as a baby; everything from respiratory issues to colic to reflux, which were all early symptoms of his Crohn’s. By the time hewas 3 years old, it was apparent that something was terribly wrong. He still didn’t have any of the “classic” Crohn’s symptoms and gut issues but instead a mouth and nose full of those canker sores. Our pediatrician tried different antibiotics and diet changes but nothing seemed to help.

Finally, we were sent to Children’s Medical Center and Hospital. Mat was given consultations for infectious disease, GI, Pulmonologists and Rheumatology. Matt’s symptoms fell under so many different categories; there was not any easy way of diagnosing it.

Not only has Matt’s Crohn’s been atypical but it’s also been rough to treat. All of the common Crohn’s medications have either not worked at all or Matt has become allergic to them. Matt has had approximately 10 colonoscopies and endoscopies; four central IV lines placed surgically to deliver nutrition (TPN); and an NG feeding tube, which he had for eight weeks. There have been so many admissions to the hospital for infections and Crohn’s flares that he’s lost count.
Currently, Matt has a g-tube or button for nutrition. He is on his 12th Crohn’s medication, and we are so happy to report that for the first time ever – Matt is in remission!

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