NEBRASKA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION

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About The Nebraska Chapter of the National Hemophilia Foundation
The Nebraska Chapter of the National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Programs & Services Offered

  • Medical research

  • Annual Family Education Weekend and Kearney Education Day

  • Certified Hemophilia Treatment Center at UNMC and Children's Hospital

  • Nebraska Chapter Financial Assistance Program

  • Parent Information & Networking Group for families of newly diagnosed children ages 0-12

  • Family camp for those with bleeding disorders

  • Social and networking opportunities

  • Each year, the Nebraska Chapter of the National Hemophilia Foundation holds a State Advocacy Day. The day offers people with bleeding disorders and their advocates training on how to speak with legislators, and an opportunity for individual visits with members of the state legislature.

Did You Know?

  • Nearly 125 people in Nebraska have a hemophilia. It’s estimated that more than 10,000 people have some kind of bleeding disorder.

  • In Nebraska, there are 2,450 people affected by a bleeding disorder, including those affected, family members and caregivers.

  • 1 in 5,000 males are estimated to have hemophilia at birth.

  • VonWillebrands affects an estimated 1% of the population.

You Can Help

  • $10 can help procure supplies for a child to learn how to self infuse at educational events.

  • $25 provides one family a gas card to travel from a rural community to visit their Hematologist at the Omaha Hemophilia Treatment Center.

  • $100 helps support the Kearney Education Day.

  • $125 helps support Family Camp, where families participate in traditional camp activities, such as canoeing, hiking, archery, water slides, zip lines as well as an infusion clinic for youth with bleeding disorders, all with the supervision and guidance of trained nurses and staff. They also receive updated information about new trends in treatment and services for families impacted by bleeding disorders.

  • $250 covers the cost of attendance for one individual to our family education weekend.

Dollars at Work

  • 12 young men learned how to self infuse and continued to hone their skills, leading to more independence and control over their health.

  • 125 people attended our family education weekend, some for the first time, where they were able to receive education and support for living with a bleeding disorder.

  • 278 adults and youth attended educational programming provided by NENHF in 2018. These programs provide vital assistance in the management of bleeding disorders.

Contact Info
402-742-5663 | web site | 8031 W. Center Road, Suite 304 Omaha, NE 68124