NEBRASKA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION

About The Nebraska Chapter of the National Hemophilia Foundation
The Nebraska Chapter of the National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

Programs & Services Offered

  • Speakers Bureau
  • Medical research
  • Lending library
  • Annual Family Education Weekend
  • Certified Hemophilia Treatment Center at UNMC
  • Nebraska Chapter Financial Assistance Program
  • Nebraska Chapter of the National Hemophilia Foundation’s (NHF Nebraska) Academic Scholarship Program
  • Parent Information & Networking Group for families of newly diagnosed children ages 0-12
  • Summer camp and Family camp for those with bleeding disorders
  • Social and networking opportunities
  • The Nebraska Chapter of the National Hemophilia Foundation collects and maintains information and referral resources for local assistance to patients living with bleeding disorders. In addition, the Chapter has access to a National resource entitled HANDI, made up of a wealth of bleeding disorder experts, resources, and materials that anyone can request.
  • Each year the Nebraska Chapter of the National Hemophilia Foundation holds a State Advocacy Day. The day offers people with bleeding disorders and their advocates training on how to speak with legislators, and an opportunity for individual visits with members of the state legislature.

Did You Know?

  • Nearly 1,000 people in Nebraska have a bleeding disorder.
  •  Nationally, this number is 20,000.
  • In Nebraska, there are 2,450 people affected by a bleeding disorder, including those affected, family members and caregivers.
  • 1 in 5,000 male births are estimated to have hemophilia
  • VonWillebrands affects an estimated 1% of the population

You Can Help

  • $10 buys a ticket for a child to attend the Annual Red/White Game and Tailgate to network with other children living with bleeding disorders across the state and experience a family outing to watch the Huskers.
  • $25 provides one family a gas card to travel from a rural community to visit their Hematologist at the Omaha Hemophilia Treatment Center.
  • $50 provides registration fees for one family of four to attend Family Education Weekend. This event is a weekend long event filled with a variety of education seminars, exhibit booths and displays for information, teen programs, self-infusion workshops, networking opportunities, professional child care, field trips for the children, hotel and meals.
  • $100 provides one family a two day camping experience. At Family Camp, families are able to participate in traditional camp activities, such as canoeing, hiking, archery, water slides, zip lines, etc., as well as an infusion clinic for youth with bleeding disorders, and receive update information about new trends in treatment and services for families impacted by bleeding disorders. All with the supervision and guidance of trained nurses and staff.
  • $250 provides on child registration fees and transportation to a regional Hemophilia Summer Camp in Colorado, Iowa or Kansas City. At camp, children develop confidence, independence and build life-long friendships and memories. Camp is also a place of encouragement, mentoring, and education for kids learning to self-infuse and enhance their role in self-care, a skill essential for life.
  • $500 provides one family of four the opportunity to attend a National Education Conference throughout the United States.  Here, they gain access to experts in rare bleeding disorders and networking with other families from across the country.

Contact Info
402-742-5663 | web site | 8031 W. Center Road, Suite 304 Omaha, NE 68124