NEBRASKA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION
About The Nebraska Chapter of the National Hemophilia Foundation
The Nebraska Chapter of the National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.
Programs & Services Offered
- Medical research.
- Annual Family Education Weekend and Kearney Education Day.
- Certified Hemophilia Treatment Center at UNMC and Children's Hospital.
- Nebraska Chapter Financial Assistance Program.
- Parent Information & Networking Group for families of newly diagnosed children ages 0-12.
- Family camp for those with bleeding disorders.
- Social and networking opportunities.
- Each year, the Nebraska Chapter of the National Hemophilia Foundation holds a State Advocacy Day. The day offers people with bleeding disorders and their advocates training on how to speak with legislators, and an opportunity for individual visits with members of the state legislature.
Did You Know?
- Nearly 1,000 people in Nebraska have a bleeding disorder.
- Nationally, this number is 20,000.
- In Nebraska, there are 2,450 people affected by a bleeding disorder, including those affected, family members and caregivers.
- 1 in 5,000 males are estimated to have hemophilia at birth.
- VonWillebrands affects an estimated 1% of the population.
You Can Help
- $10 buys a ticket for a child to attend the Annual Red/White Game and Tailgate to network with other children living with bleeding disorders across the state and experience a family outing to watch the Huskers.
- $25 provides one family a gas card to travel from a rural community to visit their Hematologist at the Omaha Hemophilia Treatment Center.
- $100 helps support the Kearney Education Day.
- $125 helps support Family Camp. At Family Camp, families are able to participate in traditional camp activities, such as canoeing, hiking, archery, water slides, zip lines, etc., as well as an infusion clinic for youth with bleeding disorders, and receive update information about new trends in treatment and services for families impacted by bleeding disorders. All with the supervision and guidance of trained nurses and staff.
- $200 helps support the Family Education Weekend.
Dollars at Work
- 125 people attended Family Education Weekend.
- 40 people attended the Kearney Education Day.
- 45 people attended Family Camp.
402-742-5663 | web site | 8031 W. Center Road, Suite 304 Omaha, NE 68124