CYSTIC FIBROSIS FOUNDATION – NEBRASKA CHAPTER
About The Cystic Fibrosis Foundation – Nebraska Chapter
The Cystic Fibrosis Foundation works to cure cystic fibrosis (CF) and provide all people with CF the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.
Programs & Services Offered
- Supports a wide range of innovative research programs to discover and develop new and effective CF therapies.
- Compass program helps CF patients find the answers they need on any CF-related questions such as insurance and co-pay assistance, diagnostic testing and legal issues.
- State-of-the-art diagnosis and treatment services are available at the accredited CF Care Center at Nebraska Medicine. Social workers and clinic coordinators are also available at the Care Center.
- Community engagement, volunteer and advocacy opportunities available.
- Referrals to CF family support groups.
- The Cystic Fibrosis Foundation offers a number of resources for learning about clinical trials and treatments that are being developed to improve the treatment of cystic fibrosis.
Did You Know?
- 272 people in Nebraska have cystic fibrosis.
- More than 30,000 people in the U.S. are living with cystic fibrosis (more than 70,000 worldwide).
- Approximately 1,000 new cases of CF are diagnosed each year.
- More than 75 percent of people with CF are diagnosed by age 2.
- More than half of the CF population is age 18 or older.
402-330-6164 | web site | 2827 S. 88th St., Omaha, NE 68124