The FDA just approved the first drug in 22 years to treat ALS — the second treatment ever for the disease. Edaravone (brand name Radicava) is an antioxidant drug thought to preserve motor neurons in people with ALS, allowing the nerves to keep their muscles working for a longer period of time.
Community Health Charities of Nebraska (CHC-NE) is proud to announce that three of its 22 member charities received the inaugural grants from the Curt Gordon Memorial CHC-NE Foundation. These funds were awarded above and beyond the quarterly distributions that these charities are receiving from CHC-NE, which are provided by donors through the annual statewide campaign.
One of the priorities of the new Administration in Washington, D.C., has been cutting budgets, including the largest funder of health disease research in the world, the National Institutes of Health (NIH). The Trump Administration proposed cutting the NIH budget by about $1 billion in 2017. Instead, Congress passed (and the President signed May 5) a $2 billion increase in NIH funding for 2017. But the new “skinny budget” proposal for 2018 would make the earlier proposed cut even more drastic, reducing the current NIH budget by $5.8 billion.
Community Health Charities of Nebraska (CHC-NE) has announced the 2017-2018 Partnership Campaign for Health Chair for the West Central Nebraska region. Roxann Holliday, Hastings College, will lead efforts to achieve this year’s regional goal of raising $165,000 for 22 health charities through the donor-focused nonprofit organization, said Kari Hooker-Leep, CHC-NE Regional Director.
For many, the diagnosis of a chronic illness can be isolating, even with support from family and friends. Some people still feel that no one can relate to what they are going through unless they have experienced the same diagnosis. In their desperation, there is somewhere they can turn to for this kind of support. The funds for this support comes from donor contributions given to Community Health Charities of Nebraska during annual workplace campaigns. Our member charities can connect people with support groups where they can learn more about their diagnosis and talk to others who are experiencing similar problems.
Arthritis Foundation Nebraska, one of CHC-NE's 22 member charities, is hosting its annual Walk to Cure Arthritis on Saturday, May 13, 2017. The event will be at the Pavilion at Mahoney State Park starting at 8:30.
Last year's record-breaking crowd of 340 participants and 50 volunteers meant that the event has outgrown Schramm Park, which is why the event was moved to Mahoney State Park. The event honorees this year are:
- Kathryn Wildy, MD., from Rheumatology Consultants, Medical Honoree
- Cathy Pietrick from Omaha, Adult Honoree
- Alexis Bach from Emerson, NE, Youth Honoree.
Schneider Electric/DTN/The Progressive Farmer is the presenting sponsor. Other sponsors are Home Instead Senior Care, Westroads Rheumatology, Ortho West/Rheumatology Consultants, Fremont Health, Rheumatology and Osteoporosis Service from Lincoln, Lincoln Federal Savings, GIKK Ortho Specialists, CHIHealth Orthopedics and Sandhills Publishing.
If you would like to participate, go to www.walktocurearthritis.org/nebraska. Money raised will go towards research to find a cure, JA activities and events and community resources.
Immunotherapy is the current buzzword in cancer research, and for good reason. Current front line treatments are usually radiology and chemotherapy. But, as anyone who has gone through these treatments will tell you, the biggest downsides are the side effects. Instead, Immunotherapy harnesses the body’s own defenses to overcome cancer.
Everyone knows to wear green on St. Patrick’s Day, but those affected by cerebral palsy will also be wearing green and raising awareness on March 25 for Cerebral Palsy Awareness Day.
Cerebral palsy is a non-progressive disorder of the motor control areas of the developing brain. It is caused by damage to one or more specific areas of the brain. About 764,000 children and adults currently have cerebral palsy, and about 10,000 babies born each year will develop cerebral palsy.
When Ruth and Kody McCain’s first son was about 18 months old, he was diagnosed with Partial Merosin Congenital Muscular Dystrophy, a genetic condition where both parents are carriers but do not generally have symptoms of the disease. With this diagnosis, the couple learned that there was a 1 in 4 chance that their other children would have it.
During the last week of December 2016, the FDA formally approved a new drug from Biogen called Spinraza (nusinersen) for the treatment of spinal muscular atrophy (SMA.) Just five years ago, there were no approved therapies to treat the underlying cause of SMA. MDA has funded foundational work in SMA and invested nearly $750,000 in awards for early-stage development of nusinersen. Since its inception, MDA has invested more than $45 million in SMA research. This breakthrough will help Nebraskans like Ollie and is only possible because of your gifts.
Community Health Charities of Nebraska (CHC-NE) has awarded Valmont Coatings West Point Galvanizing the Platinum Award, which is the highest per capita award possible. This award recognizes all of Valmont’s employees who donated during the annual employee giving campaign, which helps support those in Nebraska affected by a chronic health issue.