THE ALS ASSOCIATION MID-AMERICA CHAPTER

About The ALS Association
The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

Programs & Services Offered

  • The ALSA Center provides the highest quality of care for individuals with ALS. The Chapter partners with the Center through referrals, financial support, and medical team participation. The Chapter partners with the University of Nebraska Medical Center Physicians (UNMCP) in a clinic located in Omaha, Nebraska.
  • Consultation with our professional care services staff of nurses and master's level social workers is available via phone and email throughout the course of ALS.
  • Adaptation & Equipment Program offers evaluation of equipment needs and home adaptations that can preserve energy and independence; identification of best sources for recommended devises and adaptations; and a loan pool of primarily used equipment that can be used if sources are not available.
  • Resource and Referral lists of medical professionals, service providers and vendors that have experience with ALS are maintained by the Chapter.
  • Education through materials and programs for people with ALS, caregivers and families.
  • Support for Families through support groups; the Care Connection Program, which is a network of volunteers from the community that provides help for ALS families; and the Walk to Defeat ALS - a family centered activity to honor those with ALS and to raise awareness and provide funding for care services and research.   
  • Each year the entire ALS Association participates in “A Day on the Hill” and “Grass Roots Advocacy” programs to assure that legislators at both the state and federal level are fully aware of the needs of the ALS community.  Our greatest successes in this program to date include:
    • the elimination of the 24-month waiting period for Medicare benefits for those with ALS
    • increases of over $400 million in government funding for ALS research over the past 10 years
    • the inclusion of ALS for study by the Department of Defense
    • Regulations that establish ALS as a service-connected disease, giving veterans with ALS and their survivors’ access to more than $500 million in benefits.
    • a national ALS registry at the Centers for Disease Control and Prevention

Did You Know?

  • 87 people in Nebraska have ALS.
  • Every 90 minutes, someone is diagnosed with or passes away from ALS.

You Can Help

  • $10 covers a set of devices for assistance with daily living such as utensils, zipper and button pulls, etc.
  • $25 provides 20-minute consultation with a Care Services Specialist
  • $50 covers the loan of a walker
  • $100 provides the loan of a device to assist in communication
  • $250 buys one home visit
  • $500 covers one-third of the cost to send an individual with ALS to Advocacy Day in Washington D.C.

Contact Info
402-991-8788 | web site | 900 S. 74 PLZ., Ste 106, Omaha, NE 68114