THE ALS ASSOCIATION MID-AMERICA CHAPTER
About The ALS Association
The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with ALS/Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
Programs & Services Offered
- Education through materials and programs for people with ALS, caregivers and families.
- Equipment & Adaptation Program: The chapter maintains an equipment loan program with items ranging from power wheelchairs and electronic communication devices to small things like button fasteners.
- Resources & Referral: The Care Services Team members link people with ALS to appropriate resources to navigate the complex system of health, social, legal and financial services.
- Advocacy & Public Policy Program: The ALS Association’s Chapter network plays a lead role in advocating for increased public funding and private support of ALS research and public policy initiatives that responds to the needs of people with ALS.
- The Care Services Team provides education and awareness of ALS and the programs/services of the ALS Association to the healthcare community and those who work with patients and families throughout the Chapter's service area via new client kits, physician kits, professional education and presentations.
- The Care Services Team provides support to family members and caregivers through a variety of programs and services including support groups, circles of care, caregiver programs and children’s resources referral.
- The ALS Treatment Centers/Clinics Program is our most valuable program where people with ALS are seen every 4 weeks and are provided an individualized care plan.
- Respite Program: Even though many caregivers/families are committed to providing care, unforeseen or unique circumstances may occur requiring short term respite to continue the care for their loved one with ALS.
- Medical Research
Did You Know?
- 87 people in Nebraska have ALS.
- Every 90 minutes, someone is diagnosed with or passes away from ALS.
You Can Help
- $10 covers a set of devices for assistance with daily living such as utensils, zipper and button pulls, etc.
- $25 provides a 20-minute consultation with a Care Services Specialist.
- $50 covers the loan of a walker.
- $100 provides the loan of a device to assist in communication.
- $250 buys one home visit.
- $400 supports the chapter’s Respite Program.
- $500 covers one-third of the cost to send an individual with ALS to Advocacy Day in Washington D.C.
Dollars at Work
- 583 pieces of equipment were loaned out across our chapter service area. Currently, we have 235 pieces of equipment that are in use in client’s homes.
- 618 people and their family from across our chapter service area received resource and referral services.
- 252 people with ALS plus family and friends for a total of 867 from across our chapter service area attended support group meetings.
- 394 people attended one of the chapter’s six ALS treatment centers with a total of 778 clinic visits for the year.
- 16 ALS family caregivers participated in the chapter’s Respite Program.
402-991-8788 | web site | 900 S. 74th Plaza., Ste 106, Omaha, NE 68114