THE ALS ASSOCIATION MID-AMERICA CHAPTER

About The ALS Association
The ALS Association is leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with ALS/Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.

Programs & Services Offered

  • Education through materials and programs for people with ALS, caregivers and families.

  • Equipment and Adaptation Program provides patients with the evaluation of equipment needs; identification of the best source of recommended devices and adaptations; and an equipment loan program with items ranging from power wheelchairs and electronic communication devices to small things like button fasteners.

  • Resources & Referral: The Care Services Team members link people with ALS to appropriate resources to navigate the complex system of health, social, legal and financial services.

  • Advocacy & Public Policy Program: The ALS Association’s Chapter network plays a lead role in advocating for increased public funding and private support of ALS research and public policy initiatives that respond to the needs of people with ALS.

  • The Care Services Team provides education and awareness of ALS and the programs/services of the ALS Association to the healthcare community and those who work with patients and families throughout the Chapter's service area via new client kits, physician kits, professional education and presentations. It also provides support to family members and caregivers through a variety of programs and services including support groups, circles of care, caregiver programs and children’s resources referral.

  • The ALS Treatment Centers/Clinics Program allows people with ALS to be seen every three to four months. They are provided an individualized care plan.

  • Quality of Life Grant Program assists ALS families with the challenges they face every day and reimburses ALS families for their needs in respite, communication, home modification, access to medical care and for special circumstances.

  • Medical Research

Did You Know?

  • More than 100 people living with ALS in Nebraska are being served by the Chapter.

  • Every 90 minutes, someone is diagnosed with or passes away from ALS.

You Can Help

  • $18 provides educational materials, booklets and resource guides for a newly diagnosed client.

  • $25 pays for the cost of a client’s Boogie Board to assist with communication.

  • $32 purchases a set of devices to assist with daily living such as utensils, zipper pulls and button hooks.

  • $95 pays for educational materials and kits to support a client through the stages of disease progression.

  • $179 covers fees for continued education and training for a Care Service Specialist at a clinical conference.

  • $400 grants financial assistance to a client through the Quality of Life program.

  • $500 covers one-third of the cost to send an individual with ALS to Advocacy Day in Washington D.C.

Dollars at Work

  • Currently, 285 pieces of equipment are in use in client’s homes.

  • 268 people with ALS plus family and friends for a total of 916 from across the chapter’s service area attended support group meetings.

  • 374 people attended one of the chapter’s six ALS treatment centers with a total of 860 clinic visits for the year.

  • 117 ALS family caregivers participated in the Chapter’s Quality of Life Grant Program.

Contact Info
402-991-8788 | web site | 900 S. 74th Plaza., Ste 106, Omaha, NE 68114